Tuesday, November 27, 2012

Brief intermission

Well, I wanted to share some Thanksgiving photos with you.  We did thankfully enjoy the holiday at home together as a family.  However, I'm trying to figure out some new photo storage error that Blogger is feeding me.  Dang it.  SO, while I try to recruit some people more technologically advanced than myself to help me figure it out, please bear with a brief intermission in the blog.  It appears Google (that owns Blogger) wants to charge me to upload more photos and maintain the blog.  Considering our financial situation at this time, that will not be an option for us.  I hope and pray that will not be the case.  I hope to be back to updating and sharing Keegan's journey with you soon!  Fingers crossed.  And if any other Blogger users have figured this out, I would love some help!  Thanks.

Stay tuned!

Monday, November 19, 2012

Seacrest Studios opening at CMC

Gray and I were honored to be invited to a very special event at Children's Medical Center last week.  Ryan Seacrest has a nonprofit foundation that built a radio station right in the hospital for use by and for the patients.  It will be broadcast on an internal tv station for the kids' entertainment and as a creative outlet for kids while they are hospitalized.  The station here is the third one his foundation has built, with others in Atlanta and Philadelphia.  Two more are planned in Boston and Cincinnati (I think) soon.  I am very interested to see how this actually works, but I am hopeful it will be loved by the patients and families for years to come.  Pardon my fuzzy phone pictures.  This was the best I could do!

The outside of the studio on the lobby level of the main hospital
I couldn't get close enough for a picture of the inside of the studio.

The outside plaza area where a permanent stage for performances
by patients, staff, and guests will be.
Just above this plaza is the main entrance to the hospital.

Ryan giving an interview for Good Morning, Texas on the red carpet

VP Doug Hock giving the opening statements and introducing Ryan and Selena Gomez

Selena Gomez is an ambassador for the Ryan Seacrest Foundation.
She was instrumental in bringing this studio to Children's, as Dallas is her hometown.

Ryan, his family, Selena, Doug, and 14 year old patient, Maddie, cutting the ribbon


After the event, I was finally able to drop off the wagon and toys we collected for the toy closet on the cardiac floor in honor of Keegan's birthday.  I mentioned (two whole months ago, eek!) that the toy closet, where patients can "check out" toys to borrow during their stay, was getting pretty pitiful.  Hopefully, this will bring some smiles to everyone, including Keegan, and that it will keep the closet stocked for awhile.  Thank you again to everyone who helped make this possible.


And I promise a substantive update will be forthcoming...still waiting on some more info from the team frist.  Thanks for your patience and continued prayers for our Bug.  We are so grateful to be heading into Thanksgiving week at home!

Sunday, November 11, 2012

Ballerina Tea Party

Audrey and I were given a wonderful opportunity yesterday to spend a fun afternoon together and also help out the hospital.  Our neighbor, Tony, is a local radio DJ.  He gifted us with tickets to the Moscow Ballet's Russian Tea Party at the Hilton Anatole.  It turned out that it was also a fundraiser for Children's Medical Center.  It was a perfect afternoon.  We met one of the principal dancers with the Moscow Ballet, had a lovely tea and sweets, got to try on some of the Nutcracker costumes (well, we could have; Audrey loved looking but not touching them), and participating in a silent auction.  I loved the chance to spend time doing something so special with my little ladybug.  She had a spectacular time and is still wearing her crown! Thank you so much, Tony!








Friday, November 9, 2012

Ugh

What. A. Week.

My grandfather has been in the hospital all week.  We thought he had a stroke, but the doctors ruled that out.  He was released Thursday afternoon, but he had another spell within 10 minutes of being home.  He is stable now, but the doctors are scratching their heads a bit.  Seems to run in the family.  We think that it has to do with his blood pressure.  He'll be inpatient over the weekend.  Prayers would be greatly appreciated.

A cold/respiratory virus that has hit all four of us to varying degrees.  Audrey's on an inhaler, and I'm on antibiotics with a cough so deep that I think I pulled a back muscle.  Keegan is drippy but so far holding his own.  Gray got off the lightest it seems but is still stuffy.

I have a lovely case of Achilles tendonitis that has sidelined my running since Sunday.  It's actually been nagging me for a few months but got the best of me recently.  Saw a podiatrist today.  Steroids, a few more days of rest, ice, and stretching.  Hoping that 8 days off won't harm my readiness for the half marathon in one month.

The drug used for Keegan's monthly nebulized treatment for prevention of pneumonia is unavailable after the tainted steroid situation.  His team of doctors finally decided on a daily oral drug that can substitute temporarily.  There is a a risk that this drug could in an of itself could cause a flare, but the risk of developing this opportunistic type of pneumonia is greater.  He got the first dose last night after dinner.  Threw up his dinner, in its entirety, this morning when he woke up.  We shifted the dose to the early afternoon.  So far, so good.  Labs looked pretty good today, so we are hopeful that things will stay kosher over the weekend.

Sorry for the short post, but as you can see, it's been a heck of week.  Hope yours has been better!

Thursday, November 1, 2012

Halloween 2012

The week of Halloween in pictures:

Some fun times at the pumpkin patches.

This boy loves the hay maze.

"I did it!"


In about 4 years or less, this girl will be taking equestrian lessons!
She is a natural and is in love with horses.

The Cat in the Hat with Thing 1 and Thing 2 and the Fish in the Pot

"It's fun to have fun, but you have to know how."
"Two things.  And I call them
Thing One and Thing Two."

The Things and Aunt Alex


On our way to the neighborhood pre-trick-or-treating party.
I started the tradition of gathering the kids and families together for a party, 
and since then, the party is "handed off" to another neighbor each year.
Our friends, Richard and Mary Beth, hosted the party this year.
Thanks, y'all!


Audrey and Blake

The whole crew, plus or minus a few.

Setting out in pursuit of candy.
Audrey was into it; Keegan not so much.
He was "strongly encouraged" to go up to a handful of houses 
but chose to stay in the wagon after that.

"Trick or treat, Mr. Carl!"

Audrey was quite proud of her small amount of candy.
She wanted some immediately this morning when she woke up.

Gotta have some ghost cake!
It wouldn't be Halloween in the Harrison/Huffman houses without chili and ghost cake.

Keegan got to pick the pumpkin carving theme this year.
"No one but Donald Duck!