Thursday, September 15, 2011


I don't even know where to start this update.  It will be a brief one for tonight.  Keegan is not doing well.  He had a very rough day of high temperatures.  The IVIG we gave him last night did not stop the inflammation occurring in his body.  The markers continued to rise, while his blood counts continued to fall.

We had a long meeting with all the doctors today.  The plan at 4pm was to repeat another dose of IVIG and get him scheduled for a bone marrow biopsy tomorrow morning.  Keegan did not follow that plan, unfortunately.  I don't have the energy for all the details from tonight, but he is toeing the line for an ICU admission right now.  He spiked to 105.3 around 8pm and was not initially responding to anything we gave him to stop it.  He has come down to around 103 now and finally is resting without pain.

Keegan really needs this bone marrow biopsy in the morning.  They are trying to move him to first case.  We need the biopsy to rule out a few things before taking the next steps.  If we see what we are anticipating seeing in his bone marrow, Keegan will go to the ICU tomorrow to start a three day pulse of very high steroids, usually used to treat rejection.  After that, he will get one of two other drugs to stop his immune system from going nuts, like it is now.

Prayers for tonight:

  • That Keegan is able to tolerate the rest of the IVIG infusion and that it buys him enough stability to get through the biopsy in the morning.
  • For his safety through the steroid pulse.  Many complications can arise from this, as the steroids and the drugs he will need after that, will essentially wipe his immune system out completely.  The coming weeks are going to be even more difficult.
I will update tomorrow with more detailed information and explanations.  Right now, I want to wait until we have the biopsy results and a clearer plan before putting anything out there at the moment.  Thank you for your understanding.  And thank you, more than anything, for your prayers for our Bug.  We love him more than life itself, and we are very, very scared right now.  Thank you for supporting us all during this time.

"I have made you, and I will carry you.
I will sustain you,  and I will rescue you."
Isaiah 46:4


Alyson said...

Praying for sweet Keegan!

Kathleen said...


LaFayne's Blog said...

We are praying for Keegan. We love y'all....

Kei Bedford Antilley said...

Prayers for your sweet Keegan.

Ruth said...

I am so sorry this is happening. Prayers for your precious boy.

Mary Beth said...

Maddie - I am praying for all of you right now. My heart breaks that you are dealing with all of this right now. You are God's instrument and such a gift in Keegan's life. You are amazing!