Tuesday, June 14, 2011


I don't really have the energy for a big post tonight.  Just wanted to say that Keegan did have another colonoscopy today.  They didn't see a lot visually throughout his colon and intestines.  However, the tissue is so sensitive over time that he suffered a good amount of bleeding from the procedure.  Imagine a burn victim whose skin sloughs off with the slightest pressure.  Yuck.  That should taper off over the next few days.  The "clean-out" was hard on him last night.  He has difficulty tolerating the solution that is used, and he threw up a good deal during it all.  He is asleep and hopefully it will be peaceful for him tonight.  Biopsy results won't be back until Friday at least.

We actually started the steroid pulse tonight.  There was no reason to put it off any longer.  We also accessed his new port and are using it now.  PICC should come out tomorrow.  The albumin and IV lasix did pretty much nothing to help his fluid retention.  We may have to repeat that again.  Considering the bleeding and the amount of blood taken for a large variety of labs today, it is possible he may need another blood transfusion this week too.

If he does well enough over the next few days, we could theoretically go home as early as Thursday afternoon.  If we get pushed into Friday for any reason, we will likely stay through to Saturday to see if the fever comes back.  Maybe this weekend will be better!  We are so ready to be home and stay there.

Lastly, I just want to put a big thank you out there to those of you who have brought food based on the Care Calendar and also those who have sent bows to donate in honor of Audrey's birthday.  Our hearts are so full from your blessings.  Thank you cannot even begin to describe it.  I really have no words.  We are completely humbled and beyond appreciative.  Y'all are amazing.  Thank you!

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