Saturday, May 28, 2011

Doing well

Just a quick note to say the surgery went well, much smoother than anyone was really expecting, I think.  Keegan is doing well too.  I am pretty confident that he will go back to the cardiac floor tomorrow afternoon after his femoral and arterial lines are removed.  The best news is that we don't think that he suffered any neurological complications so far from the line coming out.  He has had a few energy spurts of sitting up in bed.  He recognized all of our family members, asked for Curious George, and counted to 5, and colored for a bit.  I definitely think that he feels better than he has the last few days.



Cultures on the port will be pending for 48 hours, and we will have to wait and watch to see if the fevers come back.  Keegan is on scheduled IV tylenol right now, so unless it gets so high that he spikes through, we may just be masking them.  I don't have a lot more information than that right now.  The plan is still to tease out the remaining infectious avenues, treat what we may find, and then proceed with the steroid pulse.  He will need another central line placed sometime soon, but the team thinks we need to give his heart a rest from that right now.  His PICC is still in and working.  We have to keep his arm immobilized with a stiff "no-no" sleeve to keep it working, but it doesn't seem to bother him.

This was a very difficult day for us, but your prayers and reassuring encouragement lifted us up time and again.  We are forever grateful.  The Lord is faithful, and we felt the presence of His angels surrounding Keegan today.  This was a big hurdle to overcome, but unfortunately, it does not shorten our journey.  We still have a long one ahead, but we are thankful for your support through it all.  Thank you, thank you, thank you.

2 comments:

Vanessa said...

I'm so sorry that your family is going through this. Yor family is in my prayers!!

Katie said...

Please let me know if there is anything I can do for you. I was so glad to meet you and I feel like your family. I love your son like I love my own and pray for him all the time. He is so strong!
May God be with you

Katie