Monday, February 7, 2011


Once again, this week has come around...Congenital Heart Defects Awareness week.  I have a love-hate relationship with it.  I cherish the chance to spread the word.  To educate.  To hopefully prepare or comfort one more family who will have to walk this road. 

But I hate that I have to have a "cause".  I hate that even one more child will fight this fight.  The truth is that almost 40,000 babies born this year in America will join this fight.  And 4,000 of them will have lost the battle before they reach their first birthdays. 

And the rest?  The survivors.  They will bear these as a testament to their battle.  And I hate that.

He's only 3 years old.


There are too many like him.  So, I'll take this week to tell you once again about the world of congenital heart defects.  And I hope that because we will continue to spread the word, one day there will be more like him. 

1 comment:

jenni said...

Maddie, I usually just lurk, but I thought I'd comment today.

Your family is so precious! I'm so grateful to know Keegan and your family through Awesome Aunt Alex and your courageous blog.