Sunday, February 13, 2011

Kidney results

I wasn't sure if I should post this or not, but I figured it was best to just go ahead with getting it out there.  Keegan's kidney testing from 2 weeks ago (yes, we're just finding out...don't get me started) came back showing that he has 55% function remaining. 

I was unsure of putting it out there because we have not spoken with nephrology to get a good idea of what this means for Keegan.  We got the results through the transplant team who told us they were not sure where that put us and would need to talk to nephrology.  Comforting, huh?  I'm pretty sure they were surprised at the results.  Keegan's cardiologist told me she was thinking and hoping it would be 70% or more. 

Around 35% kidney function, you begin the transplant listing process.  So, we don't have a lot of wiggle room here.  It is definitely disappointing that he is this low at only 3 years old.  Unfortunately, we did not run this specific test before Keegan's most recent bout of renal failure, so we're unsure as to how much it really affected him.  At any rate, I would think that this just means we will have to monitor him more closely.  I anticipate the team will want to repeat the glo-fil in 6 months or so to determine if he is stable or declining (and if so, at what rate). 

Obviously, this wasn't the news we were hoping to hear, but it also doesn't mean there is a lot we can or will do.  It's more of the same ol' thing we are too familiar and too tired of hearing...wait and watch.  Wait and watch.  Hopefully, we will talk to Keegan's nephrologist soon and get a better idea of where we stand after these results.  We will certainly share that information as soon as we do.  Thank you so much for your prayers and support.  I know I say it all the time, but we truly do. 

1 comment:

Cody said...

Maddie, thank you for sharing, I've been praying each day for good results. I can not imagine the depths of your concern. Please take comfort in knowing that we are with you each step of the way, holding your family, and especially Bug, in our hearts.