Tuesday, March 3, 2009

Beantown

It seems if you hand people all the work they should have done on a silver platter, all cut up in easy bite-size pieces, miracles do happen. One of the administrative directors of the hospital who works with me on a hospital committee came by yesterday. She kept saying how all the work I did to get Keegan to Boston was their responsibility, and I shouldn't have had to do it. Well, if you have known me for any length of time, you know I don't sit on my hands and wait for you to get things done. It's why I never felt comfortable having a secretary or asking my court clerks to do something I could do myself. I guess it's why I don't wait for a nurse to come fix Keegan's IV pumps or change his line dressing. If you want something done right (and not 6 months down the road!), you have to take matters into your own hands.

That being said, KEEGAN LEAVES FOR CHILDREN'S HOSPITAL OF BOSTON TOMORROW MORNING AT 7:30AM!! He and Gray will have medical air transport on the Children's jet. The team will pick them up bright and early, and then I will hop on a commercial flight to meet them there with all our stuff. It's getting late, and we have a terribly early, long day ahead of us. I will certainly update when we are there, and we are planning to take plenty of pictures along the way. We'll be sure to post them when we're up an running tomorrow.

Big thank yous to Chelle, Dr. Barnes, Susan D, Sandra M, and Dr. G for your help in putting me in touch with the right people. We couldn't have done it without you. Big thank yous to my friends Angie and Laura T...without your support, I might not have stayed sane enough to get through this. And BIG thank yous to each and every one of you, especially our family, who have supported us and prayed with us through this process. We understand we may not get any more answers in Boston as we have had here, but we have to try. We appreciate your prayers for safe travel and comfort on the journey.

Next post from Children's Hospital of Boston!

Maddie

Gray's grandmother provided the perfect verse for today:

Trust in the Lord with ALL your heart and lean not on your own understanding; in ALL your ways acknowledge Him, and He will make your paths straight. Proverbs 3: 5-6