Sunday, January 25, 2009


Keegan has had a pretty quiet weekend. He passed the capsule camera yesterday, so we don't have to worry about having to surgically remove it next week. Again, we may get results on Monday afternoon but probably not until Tuesday. We should have the bone marrow results on Monday though. Once we do have the capsule results, we will schedule Keegan's next surgery for the g-tube placement, liver biopsy, and any follow-ups indicated by the scope. Other than that, Keegan's battling a pretty terrible diaper rash due to all the diarrhea. He continues to throw up at least once a night. There doesn't seem to be a consensus on why the relief bag is no longer working for Keegan, but we're hoping that getting the g-tube directly into his stomach this week will alleviate some of the vomitting. For now, we've stalled in increasing his feeds at 9ml/hr, and we've reduced his overnight feeds to 3ml/hr.

That's about it for now. I just wanted to put up a quick post to let you know Keegan's still fighting. Please, please continue to pray that this capsule endoscopy will provide much needed answers for Keegan. All the doctors are firmly on the same page that Keegan's symptoms are an inflammatory reaction of some type. We are hoping this capsule scope will help us find the source of that inflammation. We ask our gracious and everloving God to guide Keegan's care, extend His healing hand, and provide comfort for our precious boy. Thank you so much for loving Keegan and keeping him lifted up in prayer.