Sunday, January 4, 2009

Update

I'm so sorry for the lack in posts. To say we have been crazy busy just trying to get our feet on the ground here would be the understatement of the week! We've had so much help from friends and family watching Keegan here so we can concentrate on a working order. You know who you are, and we appreciate you more than you'll ever know. As for Keegan, he is slowly becoming more comfortable at home. The car seat is still not his favorite, but he has woken from a few naps and one morning without screaming in fear of not knowing where he is. We've had quite a few mishaps with lines, falling IV poles, pulling ng tubes out, and continued diarrhea. Keegan has even gotten used to knowing when his lines are too tight, and he will stop and whine until you untangle him. His labs weren't great on Wednesday. He's moderately neutropenic again, and his liver and kidneys didn't look too hot. The epogen is helping keep his red counts just in the ok range, and his vitamin/electrolyte levels were wonderful. He was such a champ at hem/onc clinic Wednesday with his port reaccess and labs. He just barely hit 19 pounds on their scale, but then, he proceeded to have 7 dirty diapers throughout the day. Should be interesting to see what he weighs next week. Also, we finally were able to bring all 120 books that were donated for Keegan's birthday to the Children's Legacy campus on Wednesday. The librarian was just ecstatic. I have a picture of that to post, and a few other fun pics and a video. I'll try to get that up soon. That's about all the time I have for now - sounds like Keegan needs a cat-nap badly at the moment. Thank you as always for your prayers and encouragement. We couldn't get through these days without them. Happy New Year!